Meet our family stars
Learning to live with burns
When Jade was four years old she was burnt by a cup of coffee, this led to her undergoing numerous treatments, including wearing a pressure garment...
Giving hope to children with burns
Rachel, who was badly burnt as a child, shares her story with us and explain how a new Sparks funded research project for burns could...
Adapting our lives for Batten disease
Laura has Batten disease, a very rare neurodegenerative disease which will mean she will lose her sight, speech, mental and motor abilities.
Changing the future of cystinosis
When Lena was seven months old she was diagnosed with cystinosis, a rare inherited metabolic disease
Diagnosed with a rare, genetic disorder
At just five years old Evie was diagnosed with A-T a rare, life-limiting condition which currently affects 150 people in the UK.
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