One in three children with a rare condition won’t live to celebrate their fifth birthday.

As scientists and researchers race to better understand COVID-19 and to find a vaccine, never has it been more evident to people across the world how important research is.

We need your support now more than ever, so that children with rare and complex conditions are not forgotten in the current crisis and the fight for their future continues. 

Notice of Data Breach

On Monday 20 July 2020 we were made aware of a cyber attack affecting one of our service providers, Blackbaud, and their supporter database Raiser’s Edge.
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Our child health research can save their lives.
Help us raise £10 million to find the treatments they urgently need. 
For critically ill children, there’s no time to lose.

Get involved

We need your help to ensure no life-changing ideas go unfunded.


Make a one-off donation, set up a regular gift or get in touch with us.


Sign up to a fundraising challenge or attend a special event.


For trusts, foundations or individuals looking to help save children’s lives.

For many children and their families, research is their only hope.

At Sparks, we’re dedicated to helping children with rare and complex conditions.

We do that by funding life-saving child health research across the UK.

Between 2015 and 2018, we funded research into conditions that affected 20,000 children in the UK each year.

Meet Sadie

“She’s rare, she’s special, she’s unique, and I love her for that.” 

Nobody knows what syndrome Sadie has – her collection of conditions is so rare that her family don’t have a diagnosis.

When Sadie was born three years ago, she became one of 6,000 babies born every year with SWAN, or syndrome without a name.

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