One in three children with a rare condition won’t live to celebrate their fifth birthday.

As our valued supporters and donors we wanted to share an important update about Sparks with you.

Please click below to read a letter from Louise Parkes,
joint Chief Executive of Sparks, and GOSH Charity.

Get involved

We need your help to ensure no life-changing ideas go unfunded.


Make a one-off donation, set up a regular gift or get in touch with us.


Sign up to a fundraising challenge or attend a special event.


For trusts, foundations or individuals looking to help save children’s lives.

For many children and their families, research is their only hope.

At Sparks, we’re dedicated to helping children with rare and complex conditions.

We do that by funding life-saving child health research across the UK.

Between 2015 and 2018, we funded research into conditions that affected 20,000 children in the UK each year.

Meet Sadie

“She’s rare, she’s special, she’s unique, and I love her for that.” 

Nobody knows what syndrome Sadie has – her collection of conditions is so rare that her family don’t have a diagnosis.

When Sadie was born three years ago, she became one of 6,000 babies born every year with SWAN, or syndrome without a name.

Keep in touch

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