Our Mission

No Time to Lose

We want to raise £10 million in the next four years to find the treatments children with rare conditions urgently need.

£10 million could fund over 70 new research projects and more than 350,000 hours of valuable research.

The film

No Time to Lose is our awareness film that launches the No Time to Lose fundraising campaign. The film features five children affected by rare and complex conditions – Leila, Lucy, Ethan, Sadie and Joseph – and features inspirational fundraiser, Trevor.

The film highlights that one in three children with a rare condition won’t live to celebrate their fifth birthday, but with public support, Sparks can fund life-changing treatments that will help children in the UK who have rare and complex conditions.

Watch the film below:

Watch an audio description version of our No Time To Lose campaign film on our YouTube channel.

Children deserve the best healthcare possible.

While healthcare has improved dramatically in the last 50 years, there are still no treatments or cures for children with rare and complex conditions. The only way we can help them now is through research.

Since 1991, we have funded over £30 million of research into over 80 childhood conditions. We have a strong reputation in the child health research community and have supported over 90 research institutions across the UK.

You can help us reach our goal and support Sparks in many ways, including making a one-off donation, donating a major gift or signing up to one of our fundraising events.

You can also meet and hear from the amazing families Sparks is helping, including Joseph.

Every moment counts. Your support could help change the lives of tens of thousands of children with rare and complex conditions in the UK.

For critically ill children, there’s no time to lose.

Get involved

We need your help to ensure no life-changing ideas go unfunded.


Make a one-off donation, set up a regular gift or get in touch with us.


Sign up to a fundraising challenge or attend a special event.


For trusts, foundations or individuals looking to help save children’s lives.