“We first noticed something was wrong when Harrison was three years old and our youngest son, William, started walking. He was dashing about and Harrison, who was two years older, was still using the furniture to pull himself up.
When Harrison was four he was diagnosed with Duchenne muscular dystrophy and has been on steroids ever since.
He’s not the little boy we remember at four years old as the steroids make him quick to feel emotion and sadness. It’s also a very debilitating condition. He has a powerchair now because he now can’t bare weight and is too big to be carried by his Dad. When we got the diagnosis, we were told to go home and give our son a good life because he’d be in a wheelchair by 12 and dead by 20.
There were no trials, no drugs, nothing to improve the outcome of this condition. Research is Harrison’s only hope.”