Study of children with dancing eye syndrome

This project is jointly funded by Sparks and charity partner Great Ormond Street Hospital Children’s Charity through the National Research Funding Call.

Dancing eye syndrome is a rare condition that usually presents itself in affected children between the ages of one and two. It causes jerky movements of the child’s eyes and body, unsteadiness on their feet, irritability and sleeping problems.

The condition may be linked to an underlying tumour or immune system problem, which may also affect their health. Very little is known about how effective current treatments are for these children, including whether they improve their health and quality of life.

The research

Dr Ming Lim and her team at Oxford University form the UK arm of a Europe-wide study of children with Dancing eye syndrome. The study aims to determine the most effective course of treatment for these patients. More than 50 patients have already been recruited to the study, which involves 14 countries around Europe. Now, Dr Lim and her team want to boost recruitment numbers from the UK, to help the project reach its target of recruiting 100 patients by 2020. They are also coordinating a recently established database for the entire European study.


By recruiting more patients with dancing eye syndrome from the UK, Dr Lim’s team will help the push the European study closer towards its target. This will enable the team to determine the most effective treatment for the condition more quickly, reducing any delay in children being given the treatment most likely to help them. This could allow more children with dancing eye syndrome to avoid the debilitating effects of their condition and vastly improve their health and quality of life.

UK multicentre study of children with dancing eye syndrome, a condition that leads to rapid eye movements and muscle spasms

Researcher: Dr Ming Lim
Location: Oxford University
Grant: £45,898.00

Help fund more ground-breaking medical research for seriously ill children and their families.