Current research

We are currently supporting over £5 million worth of research at research hubs across the UK.

Projects include:

  • Researching new and kinder treatments for children with rare and complex conditions like incurable brain tumours and inflammatory bowel diseases.
  • We’re researching specific conditions such as epilepsy, spina bifida, Crohn’s disease, Down’s syndrome and cerebral palsy.
  • We fund a lot of research into rare conditions that are particularly devastating, such as Krabbe disease that can cause seizures, and sight and hearing loss. Sadly, there’s currently no cure for Krabbe disease.
  • In 2019, as part of our annual joint national funding call in partnership with GOSH Charity, we funded 12 new research projects — a total of £2.1 million worth of research into childhood conditions. We don’t receive any government funding so are completely dependent on the kind donations and fundraising efforts of our generous supporters.

Find out about our funding opportunities.