Sparks stories

Meet the children and families whose lives have changed thanks to Sparks funded medical research. If you’d like to share your story with Sparks, please contact Rosie Trousdell.

We’re particularly looking for stories of children and families who have been affected by any of the following conditions – Ataxi-telangiectasia, Batten disease, have been burnt or scalded, Congenital heart defects, Cystic Fibrosis, Dancing Eye Syndrome, Epilepsy, Ewing Sarcoma, Foetal infection, Juvenile arthritis, Krabbe Disease, Lupus, Myotubular Myopathy, Neuroblastoma, Niemann Pick, Premature birth and severe cases of eczema.

Eilish who had krabbe disease smiling in mothers arms

Eilish’s Story

June 12, 2015

Eilish was diagnosed with the devastating and rare neurodegenerative krabbe disease when she was a few months old

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Joe, who had juvenile arthritis, smiling next to Arsenal calendar

Joe’s story

June 9, 2015

Joe was diagnosed with juvenile arthritis when he was six years old which left him unable to walk at times.

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Efi supports Sparks and our research into lupus

Efi’s Story

May 5, 2015

Efi suffers with lupus. Women with lupus have an increased risk of complications during pregnancies.

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