Our current partners
Action for A-T was set up by parents, Emily and Toby Read, whose daughter, Evie, was sadly diagnosed with ataxia-telangiectasia in 2011.
Founded in 2003, CDH UK not only provides essential support and information to families and children effected by CDH but are also funding essential research into better treatments for this life threatening condition.
Dravet Syndrome UK is working in partnership with Sparks to fund pioneering research into treatments and cures for this debilitating condition.
XLP Research Trust is working in partnership with Sparks to fund pioneering research into treatments and cures for XLP also known as Duncan’s syndrome
Batten Disease Family Association is working in partnership with Sparks to fund pioneering research into more effective treatments for Batten disease
The A-T Society was set up in 1989 and its mission is to improve quality of care for people living with ataxia-telangiectasia (A-T)
Anne Lennox and Wendy Hughes, two parents of children affected by myotubular myopathy, set up the Myotubular Trust in February 2006.
We are excited about our collaboration with Niamh’s Next Step looking into better treatments for neuroblastoma.
The Castang Foundation was set up in 1986 by Hilda Castang following the death of her brother, Max who had been born with cerebral palsy.
Benefit from our free research partner programme to help your charity fund vital medical research