Meet our family stars
Learning to live with burns
When Jade was four years old she was burnt by a cup of coffee, this led to her undergoing numerous treatments, including wearing a pressure garment…
Giving hope to children with burns
Rachel, who was badly burnt as a child, shares her story with us and explain how a new Sparks funded research project for burns could…
Adapting our lives for Batten disease
Laura has Batten disease, a very rare neurodegenerative disease which will mean she will lose her sight, speech, mental and motor abilities.
Changing the future of cystinosis
Lena was seven-months-old when she was diagnosed with cystinosis
Diagnosed with a rare, genetic disorder
At just five years old Evie was diagnosed with A-T a rare, life-limiting condition which currently affects 150 people in the UK.
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